Jack's Journey: Feeling better and getting out

Jack

Jackson was born August 2008 with Hypoplastic Left Heart Syndrome (HLHS), a rare congenital heart defect affecting the left ventrical and aorta. Three days after he was born he had the first of three open heart surgeries at Primary Children's Medical Center in Salt Lake City, UT. In January 2009 he had his 2nd surgery, the Glenn, and in May 2012 he had his third open heart surgery, the Fontan. He is currently doing great and you would hardly know he's anything but perfectly healthy. He's sweet, cute, and as wonderful as they come and such a joy in our lives.

Mom and Dad: Aimee & Marc (aka Hardy)

SBAimee@yahoo.com

Monday, September 14, 2009

Feeling better and getting out

A round of antibiotics later and Jack is feeling much better. He's now back to his usual busy, helpful self.

He helped dad make pancakes for breakfast by emptying the contents of all the drawers he could reach.

Then we went to the Utah State Fair. Jack loved the goats and cows, not so much the Bear Show.

And on Saturday Jack and I went to the Intermountain Healing Hearts Walk. There were probably 500 people in attendance. It was wonderful. We got to see Heart buddies (below are Teagan, Gracie and Daxton and their moms) and get to know some new families.

At the Walk they had a beautiful Angel ceremony and butterfly release recognizing those children who have lost their battles with CHDs. I was so sad this morning to read that another one of our Heart friends joined that group last night. Sweet Cali was just over a week old and after a valiant fight and numerous proceedures, she returned to the loving arms of our Heavenly Father. Our thoughts and prayers are with the Orrock family.

6 comments:

The Simmons Family said...: Oh I wish we lived in Utah sometimes... the walk would have been fun! I'm sure Owen would have fit right in amongst his buddies. Jack is such a big boy standing in the kitchen.. is he walking yet? I love the PJ's!

I was so sad to hear that Cali passed away this morning. We're continuing to pray for them.

Andrea; September 14, 2009 at 1:25 PM
Allison said...: Oh I am so glad you posted pictures of the walk! I am hoping by next year we will be able to make it to a few IHH events...looks like a blast! Also... if you are coming up to IF, we would be delighted to have you stop by! Let me know when you are coming and we can make some plans!
allismileslots@gmail.com; September 14, 2009 at 3:40 PM
likeschocolate said...: He is so adorable! I am glad he is feeling better.; September 15, 2009 at 8:29 PM
carolyn q said...: I am so glad that Jack was feeling better so you could attend the walk. It was great to see you there and I really appreciate all you have done to support the organization.
(HUGS); September 16, 2009 at 5:06 PM
The INCREDIBLE Pettit's said...: Looking good, I'm so glad we live close enough to see eachother in real life! There is a place right on 78oos. and across from that Arctic Circle and those apartments on the west side of Bangerter...is that good enough detail, sorry, but anyway they take walk in's and it's only $15 bucks, my whole family got theirs there last year and no one got the flu!
See ya soon...; September 21, 2009 at 3:07 PM
Becca said...: It was so fun to meet you at the walk! I am Ellie's mom. We sat behind you at the angel's ceremony. I was wondering if you are in Bountiful? We might be up there soon. I am so glad you got some good pics from the IHH walk.; September 22, 2009 at 5:26 PM