Jack's Journey

Aimee and I were lucky enough to spend most of the morning with our darling son. He is doing pretty well today. They gave him some medicine that can give him some flu like symptoms so he is a little irritable but overall is doing very well. We feel very refreshed today. Thanks to some wonderful friends (Chilton’s, Christensen’s and others) we were able to get a room at the University Guest House. Since I slept a total of 45 minutes the night before it was great to have a good place to go sleep. I came over this morning and spent some time with Jack and then came up to get Aimee to take her down to see the baby.

Dr. Su, the cardiologist, came up while we were there. The man has the aura of a genius, which of course he is. He answered a lot of our questions. The cardiology team met this morning to review Jack’s case and they are planning on surgery on Friday or Monday. The good news was that the results of echo cardiogram looked good (except for the two chamber heart, of course) and that they are optimistic that the surgeries can work. Aimee and I are starting to buckle down and realize that this is really going to be a long road. Luckily now we can start to see how rewarding it can be. We are so grateful for everyone’s support and kind thoughts and comments. It is truly overwhelming and makes me want to do better at expressing encouragement to those who need it.

Here are some more pics of the little guy.