Jackson was born August 2008 with Hypoplastic Left Heart Syndrome (HLHS), a rare congenital heart defect affecting the left ventrical and aorta. Three days after he was born he had the first of three open heart surgeries at Primary Children's Medical Center in Salt Lake City, UT. In January 2009 he had his 2nd surgery, the Glenn, and in May 2012 he had his third open heart surgery, the Fontan. He is currently doing great and you would hardly know he's anything but perfectly healthy. He's sweet, cute, and as wonderful as they come and such a joy in our lives.
Jack got rid of quite a few lines and tubes today, and they plan to take out even more tomorrow. It makes it extra hard to not pick him up and just nibble on his cute cheeks.
I got to half hold him for a few minutes after they took the ventilator out. It helped tide me over until I get to actually pick him up.
Our next big steps are really just to get him feeding and healing. He's up to 2 cc's per hour on his breastmilk which he is tolerating well.
He is such a gorgeous little guy! You are amazing parents. I cannot imagine what the 3 of you are going through, yet you do it with grace and optimism. Best wishes for continued improvements in the future!
Tommy, Jessica, and Avery Weyerts (just in case ya don't recognize our names, I am Lowell's step daughter)
3 comments:
He is such a gorgeous little guy! You are amazing parents. I cannot imagine what the 3 of you are going through, yet you do it with grace and optimism. Best wishes for continued improvements in the future!
Tommy, Jessica, and Avery Weyerts
(just in case ya don't recognize our names, I am Lowell's step daughter)
I can imagine how you guys are just itching to hold this sweet little guy. What a cutie. :)
He's doing so good!
...and Aimee, you're looking great!
LOVE the pic of you holding him, Aimee!!!! YAY!!!
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