Home!

We finally got discharged yesterday around 2:00 p.m. and were able to bring precious Jack home for the first time. It has been so wonderful and a little bit terrifying.

Someone decorated our front door to welcome us home. It was so sweet I nearly cried, so thank you whoever you are!

Jack got his pacer wires and all his bandages out and off on Friday so he got to wear clothes for the first time. It makes him so snuggly and cute.

I fully intend to get some better photos later today, but ever since we got home we have spent all our time just trying to figure out what the heck we are doing.

Home Health came by yesterday and brought all our oxyen and feeding supplies. He is only on .25 liters of oxygen, so hardly anything, but it means we have a great big oxygen machine in our living room and several tanks in the closet and he is still somewhat tethered even though he no longer has any monitors. We can only go so far with him before we have to switch to a new oxygen source or trip over miles of tubing. That makes it hard to just run upstairs to change his diaper our run downstairs to grab a bottle, but we're figuring it out.

The feeding situation is also getting better. We have a pump so we can feed him at night without having to wake him up which means he actually slept quite well last night for probably the first time ever (no beeping or being poked for vitals every few hours). Unfortunately even though he wasnt' crying it doesn't negate the hour plus that it takes me to get his bottle ready, feed him with the pump, clean the pump and all his feeding supplies, then go breast pump so he has more milk for his next meal. He eats every 3 hours so I'm a little tired today and I don't foresee me getting untired for the next while. My only snag is that ever since doing his feeds last night without waking him up, he is now refusing to wake up today at meal time to try to take a bottle which he was getting so good at.

I did almost lose it yesterday when we got home and it was time for his meds and none of the names on the bottles matched the name of what I was supposed to be giving him. I had to call the pharmacy to find out what generic drug name on the bottle matched what they had written on our discharge papers. It was frustrating and almost pushed me over the edge, but I think I've almost got it all figured out. I'm working on a master schedule of feedings and medications so we can keep track of everything since everything kind of runs together these days.

Hardy has to work alld ay tomorrow so thankfully my mom is going to come out and help me. I don't quite have everything figured out enough yet to do it totally on my own. Thankgoodness for moms!