This is Congenital Heart Defect Awareness Week!
I think last year for CHD week I shared lots of scary facts and figures about CHD's and how it is the #1 birth defect in America with not enough funding, etc. That's all still true, but this year my CHD message is to encourage everyone to love like you only have half a heart. You see, when you only have half a heart (or love someone with only half a heart) you know that time is precious and the people around you are incredibly important. You pray often, and never miss an opportunity to say "I love you." You are better able to mourn with those that mourn, and celebrate seemingly small, miraculous victories. Your patience is increased and forgiveness comes more easily. And all because you have been blessed with a little insight from heaven that life is fleeting and special and not to be taken for granted.
Jack and his little half heart have blessed my life in so many ways and taught me so many lessons I can no longer count (though Jack would probably tell you "six").
Today was Jack's 18 month check up (and RSV shots). His head is still huge (95%), he still tall (32.5 inches, 75%) and he's finally starting to put on some pounds (23 lbs 6 oz, 20% - up from 15% where he's hovered the past few visits). He was very, very sad, but also very brave and earned a sucked for the ride home. Good job big guy.
Biopsy and Fun
2 days ago