Wednesday, September 24, 2008
Monday, September 22, 2008
Saturday, September 20, 2008
Thursday, September 18, 2008
Starting to get a few creases and big strong muscles.
Monday, September 15, 2008
Friday, September 12, 2008
Tomorrow is his last day on his lasix so after that we'll be down to just a few medications - asprin once a day, reglin 4 times a day, and zantac twice a day. It's almost harder to remember to give them to him now that he's not taking as much. His chest is feeling much better and he now will let me hold him up on my shoulder to burp him. I even strapped him into the Baby Bjorn (thanks Gwen) tonight and we took him to another Olympus football game (well, part of it anyway). He did really well and just snuggled up and slept though most of it. He's even starting to get the hang of the car seat now that toys are starting to be more interesting to him. I went through all the toys we got from showers today and pulled the tags and wrappers off and hung them in the car seat adn stashed them throughout the house. They don't hold his interest very long as he seems to prefer looking at the artwork on my walls, but he's getting there.
We also occasionaly are seeing some tiny real smiles. They kind of look like a cross between a yawn and a smile, but it's definitely a happy face, and he's not yawning, so I count it. If he's more awake tomorrow I'll try to get it on video. Too cute.
Thursday, September 11, 2008
Our other good milestone today was that Jack passed his speech therapy. He finally ate without a tantrum in front of the therapist this morning and she said he was doing great and could probably even take more than we were giving him. Unless he starts having problems, she doesn't have to come back and we are officially done with the tube. It's so nice to only have to do basically 2 feedings every 3 hours (pump and bottle feed) rather than 3 (pump, bottle feed, then tube feed).
Wednesday, September 10, 2008
When they looked at his oxygen sats he was in the low 60's which is not good as he needs to be between 75 and 85. Eventually he got up into the mid 70's, but when they turned off his oxygen to see where his baseline rate was he was hovering around 70. The doctor wasn't too pleased with that so we're now up to a half liter of oxygen. Still not a ton, but definitely not going in the right direction. I'm supposed to take him to the pediatrician tomorrow to have them check his levels again and then have the home health nurse check again Friday so we can make sure he's doing okay. I think he'll come back down to a 1/4 once he recovers from this morning, but they said that if he keeps having blue fits and his levels don't improve then he might have to have anotehr proceedure between now and his next surgery. That would just be something minor done in the cath lab and hopefully only a night or two in the hospital, but we really hope everything is okay and that he was just having a moment.
He always seems to do great until he's suposed to see the doctor or speech therapist and then he freaks out. So apparently our little rock star doesn't like to behave in front of audience.
The best part about our visit was that we got to go see some of our heart friends. We went to visit with Daxton and bring him a little gift and HE'S GETTING A HEART TODAY! They found out this morning and he'll have his surgery this afternoon. I am just so happy for them. It's a long road having a transplant, but it sure beats waiting at the hospital for a heart for who knows how long. Yay Daxton! We also got to visit Little Laurie who was Jack's NICU neighbor. Born at less than 2 lbs, and she weighed less than 3 when we first met her, she's now about to hit 5 lbs and will be going home soon. What a cutie. I am so excited for her and her wonderful mom Patty.
Tuesday, September 9, 2008
We finally finished his 1 month birthday video! Be sure to turn your speakers on to hear the music. The song is "He's my Son" by Mark Schultz. It's sums up much of our past month and we've listened to it a lot.
We’ve come a long way in one month. It’s hard to believe now as he wakes us up in the middle of the night with his lusty cries how tiny and fragile he was just a short time ago. He’s rather stubborn, and very passionate when he feels strongly about something, just like his father. He hasn’t been with us that long, but I can’t even imagine the world with out sweet Jack any more. He is just about the nicest baby ever made. We sure love him.
Sunday, September 7, 2008
Saturday was a good day except Jack again decided he couldn't remember how to eat and every meal became a long battle just to get some calories in him. Hardy went to the Utah football game in the evening so after struggling through a few more meals I asked Hardy's mom to come help me put his feeding tube back in when she called to see how we were doing and found me near tears. We got it in and he got to sleep through his 9:00 and 12:00 feedings and get some good rest, getting just enough energy to yank his tube completely off his face around 1AM. Oh, I was so mad. I finally had to go tell dad it was his turn because I was not happy with the little fella. And what has he done ever since he yanked the tube out? Ate like a champ. I don't know what the problem was yesterday that is suddenly now fine, but he better stay fine since I am out of feeding tubes at the moment. Such big trouble.
Friday, September 5, 2008
Great guess Lisa Trent. You're the winner!
On another note, Jack gave me a bit of a scare this morning. The speech therapist came to watch him eat at 9AM and I was sure he was going to impress her with his skill. Instead he screamed for 45 minutes, turned blue, and then was too tired to eat. An hour and a half later when he woke up and I tried to feed him again since he should have been starving he did the same thing again. At that point he wouldn't even put a binky in his mouth so I knew something must be wrong. I called Hardy in tears and asked him to come home at lunch time to help me put the feeding tube back in and called the home health nurse to have her come check on him. Well, dad got home and Jack decided he was hungry and downed the whole bottle for him. Then the nurse came and since he now had a nice long nap, a full tummy, and several full diapers he pinked right up and looked great. She even decreased his oxygen since his sats were too high. So we didn't put the tube back in and everything is fine. Apparently he just needed a good poop.
Thursday, September 4, 2008
Our other good news for the day - the cardiologists said that as long as he's eating, Jack doesn't need to have his tube any more! And trust me - he's eating. Those cute little cheeks are starting to get a little chub on them. All the better for kissin'.
Wednesday, September 3, 2008
Jack has been much more awake today than usual which is both good and bad. It's great when he's kicking and happy, less great when he's crying and not letting me get anything done because he needs to be held all the time. Not that I mind holding him one bit, it's just really hard to pump or mix a bottle with a babe in arms. My little sister came over for a couple of hours to watch Jack for me so I could take a nap and get some things done, but of course he picked those exact two hours to sleep soundly so she just rocked him. Then the minute she left he decided to wake up. He did the exact same thing last week when his Grandma Strong came to rock him for me. If it weren't for the video clips, everyone who comes to visit would think all he does is sleep, and trust me, that is not the case.
On a really good note, the Merry Maids came and cleaned our house today. I must say, that has been a great investment these past couple of months. I'm not sure how much longer we'll keep having them come now that I can get around again, but it's so nice to know that once a month my house is getting a really good cleaning. They dust, vacuum, scrub floor boards, mop floors, change sheets, scrub toilets - the works. It feels like a new house when they leave. I love it.
Tuesday, September 2, 2008
Today was my first day at home with Jack and no outside help. I was a little nervous since I didn't get a ton of sleep last night, but he managed to sleep just long enough this morning for me to take a shower, then he kicked and wiggled happily on the bed long enough for me to get dressed. More than that I can't really ask for.
All in all he's doing really well. He's getting more alert and interested in looking at things around him. I could just watch him for hours. Oh wait - that is what I do. :)