Last weekend we got to go play at Jack's heart buddy Teagan's house. Jack was a big fan of the gravel pit and dump trucks. It was so fun to be having fun and eating a bbq rather than meeting for dinner at the Rainbow Cafe at the hospital like we were doing last year at this time with their family.
Friday, August 28, 2009
Friday, August 21, 2009
Thursday, August 20, 2009
Dr. Pulchaski said that he was "thrilled" with how great Jack's heart looks. The function is good, and the narrowing of the arotic arch they were worried about after his Glen seems to have corrected iteself and he's not worried about it any more. We don't have to go back for another 6 months!
We feel so blessed that Jack is doing so great and are grateful for the many loving prayers said on his behalf.
Monday, August 17, 2009
His fever is mostly under control, and his runny nose has slowed, but I can't get him to drink anything. One of his symptoms is a very sore throat and as a result I have only been able to get him to take two bottles since Saturday afternoon, one Sunday morning and one this afternoon. He should be drinking at least 4 bottle s a day so that is not nearly
enough, but every time I fix him a bottle he just pushes it away and gets mad at me. He won't drink milk, water, juice, popsicles, or jello. I've even tried watermelon which he usually can't get enough of and he just sucks on it then spits it out. I've been very worried about dehydration, but the doctor said he didn't look dehydrated so hopefully she's right. On the plus side, I'm saving money on diapers since he hasn't had a wet one in days.
He's scheduled for a sedated echo on Thursday morning so I'm hoping for a speedy recovery so we don't have to reschedule it.
Saturday, August 15, 2009
Around 1:00 a.m. Jack woke up crying so I went in to check on him. He was burning up. He had a temperature of 103. I stripped him down and put him in a cool tub and gave him some Tylenol. That brought it down to 101, but I eventually was only able to get him to sleep by taking him down to our freezing basement guest room, me curled up under the blankets, him on top in really thin summer pjs, radiating heat. Poor little guy. This morning he woke up and was back to his usual chipper self for a while, but as the day wore on and as the doses of Tylenol wore off he just is kind of miserable and stuffy.
So we missed the rest of Heart Camp, which made me so sad. But even worse then staying home with a sick kid was being stuck home feeling guilty that I had brought my sick kid to camp the night before, possibly spreading germs to other heart kids. To all the heart moms, I'M SO SORRY! I'm praying nobody else gets sick. Especailly Teagan who gave Jack a great big friendly hug. Ugh...I feel awful. And so does Jack.