Jackson was born August 2008 with Hypoplastic Left Heart Syndrome (HLHS), a rare congenital heart defect affecting the left ventrical and aorta. Three days after he was born he had the first of three open heart surgeries at Primary Children's Medical Center in Salt Lake City, UT. In January 2009 he had his 2nd surgery, the Glenn, and in May 2012 he had his third open heart surgery, the Fontan. He is currently doing great and you would hardly know he's anything but perfectly healthy. He's sweet, cute, and as wonderful as they come and such a joy in our lives.
Last week we had the wonderful opportunity to go to Disneyland. We had the best time ever. I can't think of a single thing that would have made it any better. Jack still asks every morning "We go to Disneyland?"
Thanks to recommendations from some of our heart friends we got Jack's stroller designated as a wheelchair. That was fantastic. For some of the rides it let us go in the exit and skip the germ filled lines. For others it allowed us to take his stroller into the line with us so we didn't have to carry him the whole time. The lines were really short on Wednesday and Thursday anyway, but this really made it possible for us to do everything we could have wanted while there. He was still exhausted at the end of the day, but I know he made it a lot longer than he would have without it.
I wasn't sure what Jack would think about all the characters, but after meeting Pluto on our way into the park he was sold. Every time we would meet a new character he would ask me with a grin on his face, "I give them a big hug and Mommy take a picture?" It was magic.
His favorite rides were #1) Pirates of the Caribbean. He would hold on for dear life down the hills, then ask to do it again. And he enjoyed searching for Captain Jack. I think we went about 7 times. #2) The Ferris Wheel with the swinging gondolas. He spotted the big Mickey Mouse ferris wheel at California Adventure and I agreed to take him on it, but I got in the wrong line and didn't notice until we got to the front that we were all set for a swinging car. I was a little nervous to take him up but he LOVED it. The whole way around he would giggle with joy and say "Let's roll!" #3) He also liked Small World and as we were going through the tunnels and the tune changed to "Jingle Bells" his face lit up and he exclaimed "I know that song!" So cute. #4) And Dumbo was a big hit. He was on it with Hardy and kept saying "We flying! This is so fun!"
On Saturday Jack's cousins came down to spend the day with us. That made it lots of fun. Thanks for the fun day Matt, Gwen, Paige and Seth! We will miss you at Christmas.
The first night there we went to World of Color. The next night we watched the fireworks and ejoyed the fake snow they do on the way out. Both shows were great, but on the weekend all the shows moved to 9:00 which was way too late for Jack. It worked out though because we stayed at the California Grand Hotel and we could watch the fireworks from our balcony. He and I would snuggle in our pajamas, wrap up in a blanket and enjoy the show before bed. A perfect way to end an evening.