Sunday, April 8, 2012

Countdown to Fontan

For those who may not yet know, Jack is scheduled to have his next heart surgery, the Fontan, on May 3rd.  That is just 3.5 short weeks away. Yikes!  We’ve had several opportunities to talk with Jack about how he will be going to the hospital soon so the doctors can fix his heart, but mommy and daddy will be there with him.   I mentioned that he will have to get some pokes and “owies”, but he will get some presents and treats while he is there and he looked at me and said, “My tummy hurts. Let’s go to the hospital.”  We’ll see if he’s still so enthusiastic in a few weeks. 

This week we will be heading up to the hospital for a pre-surgery class. He will get to see the OR and learn more about what is going to happen.  Hopefully that will go well. Then next week he is scheduled for a heart cath to get some pictures of his heart and check to make sure the pressures are where they need to be so he can have this surgery.   

We feel very blessed that Jack is doing so well going heading this surgery, but it is days like today when he needed a break half way through his Easter egg hunt that I am reminded that he is not like other kids and that he is ready.


1 comment:

Allison said...

I have been thinking about you... how is the stress level today? I was such an emotional wreck leading into the Fontan...some days I was all about checking things off my list, other days I just wanted to lay in bed and cry. We will be thinking about you guys as you get prepped for surgery and hope that his cath shows perfect pressures. Please let me know if you need any last minute venting, screaming, tips, etc. If I wasn't due to have a baby at that same time, we would try to come down and bring you lunch or dinner.