This was Hardy and I at Jack's cardiology appointment today when they told us we could get rid of the oxygen!
We are officially TUBE FREE! Jack's enjoying it so much he's been talking happily non-stop since we took it off. I feel so free and normal!
And almost equally good news - we don't have to go back to cardiology for 3 months! What a change from every 3 weeks. Love it.
They are still a little concerned about the size of Jack's aorta, but said that it is not a problem that will manifest itself overnight so we will just keep an eye on it. He may eventually have to have a stent put in or have surgery to fix it, but hopefully it will just grow and be fine. In the meantime, I'm not going to worry about it. We'll get there when we get there. But for today, we are fabulous!
(I keep walking up and down the stairs with Jack, just because we can. He's even had a bath so he's not only cute and tube free, but he smells good too. What a guy :)