This has been a hard week on me (and I think the whole heart community) with sweet Gracie Gledhill passing away on Monday. Ever since Jack came off his oxygen I have felt so free and normal, and then I am reminded that these little hearts sometimes break. The reality is that we are dealing with a lifelong, chronic condition that will always have its ups and downs. I then go in and hold my Jack a little longer, kiss his cute cheeks a few extra times, and have a little more patience when he spits out all his food and medication.
I hope these sweet little heart babies help us all to remember to live each day to it's fullest and to be grateful for all that we have.
Biopsy and Fun
4 days ago