Sunday, September 7, 2008

Football and feeding tubes

Friday night, to celebrate Jack's 1 month birthday, we took Jack to his first football game - Olympus vs. West Jordan. He had a marvelous time and it felt great to be out and about until around half time when Jack got hungry and hit his limit so he screamed the whole way home.

Saturday was a good day except Jack again decided he couldn't remember how to eat and every meal became a long battle just to get some calories in him. Hardy went to the Utah football game in the evening so after struggling through a few more meals I asked Hardy's mom to come help me put his feeding tube back in when she called to see how we were doing and found me near tears. We got it in and he got to sleep through his 9:00 and 12:00 feedings and get some good rest, getting just enough energy to yank his tube completely off his face around 1AM. Oh, I was so mad. I finally had to go tell dad it was his turn because I was not happy with the little fella. And what has he done ever since he yanked the tube out? Ate like a champ. I don't know what the problem was yesterday that is suddenly now fine, but he better stay fine since I am out of feeding tubes at the moment. Such big trouble.

4 comments:

Jill said...

Happy 1 month little Jack! Be good to you're mommy!

Jenn said...

I just found your blog through another. I have a daughter, Charlotte, who is about one month older than your Jack. She has HLHS, and she too loves to pull out her feeding tube! We keep her in gowns with the foldover sleeves, or we put socks on her hands. It sounds like y'all are doing well if you're out and about at one month. Thanks for sharing your story here!

Sherri - KaysvilleMomma said...

Micayla was just like this!! Some days they just don't eat great -- heart baby or not --- Just take it in stride - I don't even know if i would have put the tube back in..

Brammer Family said...

So who won? :)