Jackson was born August 2008 with Hypoplastic Left Heart Syndrome (HLHS), a rare congenital heart defect affecting the left ventrical and aorta. Three days after he was born he had the first of three open heart surgeries at Primary Children's Medical Center in Salt Lake City, UT. In January 2009 he had his 2nd surgery, the Glenn, and in May 2012 he had his third open heart surgery, the Fontan. He is currently doing great and you would hardly know he's anything but perfectly healthy. He's sweet, cute, and as wonderful as they come and such a joy in our lives.
Jack is such a nice baby. So far he has been very good at following his daddy's directions before he left town instructing him to be good and take care of his mom. Last night he was alert and happy all evening and had a great time with his grandpa and my aunt and uncle who came over to visit. He slept really well last night and has taken several good naps today. Hard to argue with that. Of course it always makes me nervous that he sleeping too much and I start to worry that he's in heart failure or that he's not getting enough calories because he missed a meal rather than just enjoy the fact that he's sleeping really well. But I guess those worries come with the territory of having a heart baby. As long as I don't freak out too much I guess it's normal. Hopefully we'll have another good night again tonight.