Jackson was born August 2008 with Hypoplastic Left Heart Syndrome (HLHS), a rare congenital heart defect affecting the left ventrical and aorta. Three days after he was born he had the first of three open heart surgeries at Primary Children's Medical Center in Salt Lake City, UT. In January 2009 he had his 2nd surgery, the Glenn, and in May 2012 he had his third open heart surgery, the Fontan. He is currently doing great and you would hardly know he's anything but perfectly healthy. He's sweet, cute, and as wonderful as they come and such a joy in our lives.
Jack is 0 for 2 with the bottle today. He is just not digging it. We are starting to get a little concerned but we knew that some kids struggled after surgery with feeding. It is a little surprising because he was such a good eater before his surgery. We are resigned that we are going to go home on the feeding tube and we are hoping we can slowly ween him off of that and get him back to taking a bottle. On a positive note he is much happier today then he has been since his surgery. He is kicking and wiggling and even smiling once in a while. The nurses don't seem too concerned about the eating so we won't freak out quite yet.