Jackson was born August 2008 with Hypoplastic Left Heart Syndrome (HLHS), a rare congenital heart defect affecting the left ventrical and aorta. Three days after he was born he had the first of three open heart surgeries at Primary Children's Medical Center in Salt Lake City, UT. In January 2009 he had his 2nd surgery, the Glenn, and in May 2012 he had his third open heart surgery, the Fontan. He is currently doing great and you would hardly know he's anything but perfectly healthy. He's sweet, cute, and as wonderful as they come and such a joy in our lives.
We just got done sending Jack into surgery. While it was extremely difficult Aimee and I are amazed at the peace we feel. Jack was smiling and happy this morning and we just know he is going to be all right. I won't say it was easy sending him away but we know it is the only way he can get better and stay with us. Dr. Kaza came up and spent some time with us this morning. He answered all of our questions and walked us through what he would be doing this morning. He said the operation is relatively simple. Simple is a little extreme for us but we have full confidence in Dr. Kaza and know that he will take such good care of Jack. He was very calm and re-assuring. Jack is truly a special little guy. Somehow I get the impression that in that little body is an understanding of this trial that is far greater than ours. This journey is truly Jack's and we feel blessed to be along for the ride. They will start updating us after they get started and we will try and post as we go. Thank you for everyone's love and support.