Sunday, August 24, 2008

Home!

We finally got discharged yesterday around 2:00 p.m. and were able to bring precious Jack home for the first time. It has been so wonderful and a little bit terrifying.

Someone decorated our front door to welcome us home. It was so sweet I nearly cried, so thank you whoever you are!

Jack got his pacer wires and all his bandages out and off on Friday so he got to wear clothes for the first time. It makes him so snuggly and cute.

I fully intend to get some better photos later today, but ever since we got home we have spent all our time just trying to figure out what the heck we are doing.

Home Health came by yesterday and brought all our oxyen and feeding supplies. He is only on .25 liters of oxygen, so hardly anything, but it means we have a great big oxygen machine in our living room and several tanks in the closet and he is still somewhat tethered even though he no longer has any monitors. We can only go so far with him before we have to switch to a new oxygen source or trip over miles of tubing. That makes it hard to just run upstairs to change his diaper our run downstairs to grab a bottle, but we're figuring it out.

The feeding situation is also getting better. We have a pump so we can feed him at night without having to wake him up which means he actually slept quite well last night for probably the first time ever (no beeping or being poked for vitals every few hours). Unfortunately even though he wasnt' crying it doesn't negate the hour plus that it takes me to get his bottle ready, feed him with the pump, clean the pump and all his feeding supplies, then go breast pump so he has more milk for his next meal. He eats every 3 hours so I'm a little tired today and I don't foresee me getting untired for the next while. My only snag is that ever since doing his feeds last night without waking him up, he is now refusing to wake up today at meal time to try to take a bottle which he was getting so good at.

I did almost lose it yesterday when we got home and it was time for his meds and none of the names on the bottles matched the name of what I was supposed to be giving him. I had to call the pharmacy to find out what generic drug name on the bottle matched what they had written on our discharge papers. It was frustrating and almost pushed me over the edge, but I think I've almost got it all figured out. I'm working on a master schedule of feedings and medications so we can keep track of everything since everything kind of runs together these days.

Hardy has to work alld ay tomorrow so thankfully my mom is going to come out and help me. I don't quite have everything figured out enough yet to do it totally on my own. Thankgoodness for moms!

14 comments:

THE KLUNKERS said...

WELCOME HOME!! We are so glad to hear that you are home. You have all been so amazing and we have been amazed at how well Jack has done. Call me if you need ANYTHING!

Brammer Family said...

Oh you guys! I'm so so glad you're home! It's fun to see Jack in some clothes, lookin' like a little boy!

I've been thinking about you all and I'm just so happy you made it home. :)

Blackner 5 said...

You guys are doing great! What a cute mom and dad you both make. I have to tell you that Tylee has been praying for "little Jack" (that's what she calls him in her prayers), and was so excited to hear that you brought him home. Keep up the good work. He looks great!

Anonymous said...

Hang in there Aimee, you'll get it all figured out eventually. My son, Zachary, had his Norwood over 2 years ago and I still remember the first day we were home - so much to remember. Writing times down makes things so much easier. Good luck with the pumping too!! Jackson is adorable - Welcome Home!!

Jana Piotter
CP: ZacharyPiotter

dnmsimon said...

Don't forget you still have our family praying for you - what a fortunate child to have parents like you. Hang in there!
Dave Simon

Sherri - KaysvilleMomma said...

I am so happy for you!!!

Andrea said...

Yeah! I am so glad that you made it home without any extended stays in the hospital! What a lucky kid! I have been following your blog since Jackson was born. Angel Christensen is my friend and I am also a member of IHH. I hope everything continues to go well at home. After having Andrew on a feeding tube, I always thought all newborns should get a feeding tube so they sleep through the night to give their moms a break. Ha ha. Glad you are home!

Andrea Mathis
Andrew's mom
www.andrewmathis.blogspot.com

Andrea said...

Yeah! I am so glad that you made it home without any extended stays in the hospital! What a lucky kid! I have been following your blog since Jackson was born. Angel Christensen is my friend and I am also a member of IHH. I hope everything continues to go well at home. After having Andrew on a feeding tube, I always thought all newborns should get a feeding tube so they sleep through the night to give their moms a break. Ha ha. Glad you are home!

Andrea Mathis
Andrew's mom
www.andrewmathis.blogspot.com

Jill said...

so glad you are all home together. I bet it feels great! I really want to come by sometime but I know you're figuring things out at home. I can't wait to see the little dude. We will be at the old ward on sunday for the farewell. I will call you this week.

Kari said...

Best of luck to you--we'll keep you in our prayers.

Patty said...

Congratulations little Jack! I went by yesterday around 3 pm but had just missed you guys! I'm so happy that you are home. I really haven't thought about what life "after the NICU" must be like. I always envisioned it as heavenly... but I guess I forgot that now you have to be nurse and mom. Amiee.. you're amazing! I would love to get together when you come back for Jack's cardio checkup. Also, my cousin made Jack a little quilt... I'll give it to you then. Congratulations again on graduating from the PICU! We miss you!

The Mason Family said...

Welcome home!!! Isn't it a great feeling (and scary too) to be home after all that Jack has been through?! Wishing you all the best...

Shannon Mason
www.carepages.com
cp:CarlieMichelle

Marni said...

Congratulations!! What awesome news. I'm sure you'll get the hang of everything soon and then you'll wonder what the big deal was. Amazing to have come this far in only three short weeks.

The Whitaker Family said...

Yeah, Moms about are pretty much the best thing in the world. Well, husbands are even better, but Moms fill a vital role that no one else does. I'm SO glad your Mom was/is with you. I'm so happy that your home too. It'll take a while to settle down, but you'll get there. YAY for sweet, snuggly, Jack! (I have a nephew Jack so I love your boy's name too!)