Jackson was born August 2008 with Hypoplastic Left Heart Syndrome (HLHS), a rare congenital heart defect affecting the left ventrical and aorta. Three days after he was born he had the first of three open heart surgeries at Primary Children's Medical Center in Salt Lake City, UT. In January 2009 he had his 2nd surgery, the Glenn, and in May 2012 he had his third open heart surgery, the Fontan. He is currently doing great and you would hardly know he's anything but perfectly healthy. He's sweet, cute, and as wonderful as they come and such a joy in our lives.
The Nurse Practitioner made another visit. She said they are done with the reconstruction aspect and are going to start to put all the wires in. They will follow this by doing an echo-cardiogram. This will test how well the heart is working and if they need to do any additional work today. She said things are going good. We are trying to stay calm but are excited they were able to do the repair with little trauma so far. Still a long way to go but hopefully we are getting a little closer to being done. I am still amazed that these Dr.’s can actually pull this off. We met with Dr. Kaza this morning and he was very re-assuring and confident. He said he “was going to take good care of him.” We are grateful to this very skilled professional and the other ones that are taking care of our little guy.