Jackson was born August 2008 with Hypoplastic Left Heart Syndrome (HLHS), a rare congenital heart defect affecting the left ventrical and aorta. Three days after he was born he had the first of three open heart surgeries at Primary Children's Medical Center in Salt Lake City, UT. In January 2009 he had his 2nd surgery, the Glenn, and in May 2012 he had his third open heart surgery, the Fontan. He is currently doing great and you would hardly know he's anything but perfectly healthy. He's sweet, cute, and as wonderful as they come and such a joy in our lives.
For all the naysayers out there that questioned my resolve to be able to stay at the hospital all night I give you the following report. Jack had a pretty good night. He slept from about 11:00-3:30. He woke up going crazy. I sat and rocked him for about an hour and then turned him over to the nurse for his 4:00 feeding. She got him taken care of and then he slept until his 6:00 chest x-ray. He had a good night but boy that boy has some lungs. His Mom is known to talk loudly so we know where he must get that from. Someday when Jack is a little older and knows what his Dad likes and dislikes he will be touched that I spent the night there with him. Aimee relieved me around 8:00 this morning looking very refreshed after a nice nights sleep at home. His bottle feeds continue to progress slowly. The speech therapist is coming by today to help us learn how to feed him a little better. Hopefully this will help.