Jack is doing so well today. They took the line out of his jugular and removed the catheter in his stomach this morning. Then this afternoon they put in his feeding tube. We are just waiting now for his xray results so they know the tube is in the right place and they will begin feeding him. He'll start at 1 cc per hour. That's less than an ounce in a day, but it's start.
The doctors and nurses have all said Jackson is a star, doing exactly what they want him to do. In fact, he's a little too helpful with his busy hands so we've had to put some gloves on him to make sure he doesn't yank anything out. He's a lot less sedated today so all the hustle and bustle of the PICU is making it hard for him to sleep, but we've discovered that he does pretty good if we build a little tent over his head to block out some of the light and noise.
Next step - tomorrow they are going to start trying to take him off the ventilator. Once they do that we've been told we'll probably get to hold him again.
We finally remembered to bring the camera, but I forgot the cord to upload the photos so I'll try to get some new pics up tonight so you can see him with his chest closed and a few less lines coming out of him.
Biopsy and Fun
4 days ago