Jackson was born August 2008 with Hypoplastic Left Heart Syndrome (HLHS), a rare congenital heart defect affecting the left ventrical and aorta. Three days after he was born he had the first of three open heart surgeries at Primary Children's Medical Center in Salt Lake City, UT. In January 2009 he had his 2nd surgery, the Glenn, and in May 2012 he had his third open heart surgery, the Fontan. He is currently doing great and you would hardly know he's anything but perfectly healthy. He's sweet, cute, and as wonderful as they come and such a joy in our lives.
Jack passed his swallow study today with flying colors. They were very pleased with the results. He will not start to gradually work his way to feeding from a bottle. This means that sometime today we should be discharged from the PICU and head up to the 3rd floor. While we will miss all the wonderful care they are given in the PICU we know that this is one step closer to taking the little guy home. They are hopeful that if everything goes well we can bring him home in the next week. We are constantly amazed at how well he is doing and know it is the results of everyone’s prayers on his behalf. We will try and post some pictures of his new room later tonight.